Just-In-Time Neuroblastoma Foundation, Inc. Provides emotional and financial assistance
to children diagnosed with or undergoing treatment for Neuroblastoma in the state
of Colorado. We also provide emotional assistance to families of other childhood cancers by providing knowledge, available resources and personal experiences from our Veteran parents.
Just-In-Time Neuroblastoma Foundation assists families and friends by tapping into our resource network, providing fund raising ideas and events, linking families to educational resources and contacts, and sharing other personal experiences needed by families during this critical time in their child’s life. Our goal is to help each family by passing on the knowledge and experiences learned by the our Veteran parents, volunteers and board members involved in our foundation when their lives were impacted by having or knowing a child with cancer.
About us
The Just-In-Time Neuroblastoma Foundation, Inc. was inspired by a boy named Justin. Justin was only three and a half years old when he was diagnosed with Neuroblastoma. From his initial diagnosis, Justin’s family struggled to find information not only on the disease itself, but also on finding information on where to turn to and how to coordinate much needed blood bank donations, fundraising ideas to offset the financial burdens of medical treatment and unpaid time off work and information on treatment options and national treatment facilities specializing in Neuroblastoma. Justin’s family was extremely fortunate in that they had a large extended network of family and friends who helped them hold silent auctions and bake sales to help with the financial burdens in the months to come; who had time to help research treatment options and nation facilities in the event Justin would need to receive treatment outside of Denver; and who were able to contribute time and financial donations. Not every parent of a child with cancer is that fortunate. After Justin had been cancer free for 15 months, Justin’s family organized the Just-In-Time Neuroblastoma Foundation, Inc., hoping it might come “Just in time” to help out another family with the same diagnosis.
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Stand Up 2 Cancer: Justin Miller
Facts About Neuroblastoma
There are approximately 650 new cases in the US annually. This represents 7.5% of all childhood cancers. It is most commonly diagnosed between 17 months to 2 years of age.
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There are no symptoms of neuroblastoma that are common to all children with the dis- ease. The symptoms are dependent upon where the tumor is located and diagnosis is not usually made until the tumor is large enough to be felt.
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The majority of tumors (65%) are located in the abdomen, often in one of the two adrenal glands. However, primary tumors can occur anywhere in the body. Other common sites are the chest, neck or pelvis. The disease often spreads from its “primary” location to the chest, bones and bone marrow. In fact, most cases have already spread at the time of diagnosis.
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Over the past twenty years, researchers have learned that neuroblastoma patients can be determined to be in a particular risk category, ranging from spontaneous remission to raid tumor progression. Patients are now diagnosed by risk category and treatment is tailored accordingly.
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Factors determining a patient’s risk category include age, stage of disease, and how widely spread the disease is - as well as genetic, molecular, and other biological factors, which are determined through laboratory science. CureSearch and Children’s Oncology Group (COG) has six laboratories dedicated to neuroblastoma, house at five different
member institutions.
Get in Touch
P.O. Box 5157 Greenwood Village, CO 80155-5157
justintimenbf@gmail.com / Tel. 719 - 339 - 8719
